As I mentioned in my last post, on June 26th we had to rush Anja to the emergency room. Lisa and Anja’s doctor were concerned about an odd symptom. Anja was having strange arm movements on the right side. She wasn’t aware they were happening, but they were constant and interfered with her ability to do most anything with that hand.

That night in the ER was traumatic, to say the least. Anja had to endure multiple blood draws, IVs, a lumbar puncture (spinal tap) as well as a drug that played with her mental state, confusing and terrifying her. After about 8 hours in the ER, Anja was admitted so they could try to figure out what was causing these movements.

Shot from Anja's MRA

The next week was full of testing. CT scans, X-Rays, multiple MRIs, and many others were run, examined and often run again. Children’s Hospital was amazing. We had literal teams of doctors coming into our room to talk to us and examine Anja. What was impressive to me was the fact that these doctors didn’t just walk in, get what they needed, then walk out. They stayed, answered our questions, and spent quality time with us and our daughter. Amazing.

Our experience felt eerily like an episode of House. It seemed like every test either came up with nothing when they expected something, or it came up with something when they expected nothing! The movements on her right side are something called Sydenham’s Chorea. This is something that is often a key symptom of Acute Rheumatic Fever (ARF). This is very rare in the US and is considered a third-world disease. The odd thing is that Anja has never had a strep infection which is the cause of ARF.

They ran the first MRI just to rule out anything neurological. But of course, since they were expecting to see nothing… One of the most startling moments of our hospital stay is when the Neurology team came in to tell us that the MRI revealed “spots” on the brain and that they would need to run additional tests. As of right now, we believe that these spots on the brain are lesions that remain as a result of micro-strokes that Anja has experienced. This is a bit alarming as ARF typically has no neurological involvement.

Her heart, on the other hand, shows the classic signs of ARF. The cardiology team was able to verify that there has been permanent damage to the heart that has resulted in one of her valves being compromised. Fortunately we caught this early enough that immediate valve or heart replacement is not necessary. If Anja hadn’t manifested the Sydenham’s Chorea, within six months she could have went into heart failure. God is good!

Although we still have more questions than answers, Anja is now home! Her symptoms remain, although they have become more subtle. One of the more challenging symptoms would the behavioral issues. But knowing that these issues are a symptom helps us be more patient. This too shall pass! How can you pray? I’m glad you asked.

Pray that the damage that has been done to Anja’s heart will stop as a result of treatment. Although this is a condition that will require life-long attention and medication, if we can stop the heart damage, no surgery will be necessary. We will be seeing a cardiologist in a few months to see how the heart is doing. They are optimistic, as are we. If her heart stays the same, we’ll just need to continue medication and see the cardiologist every six months to check on things. If it declines, surgery is the likely response.

We will also be seeing a neurologist again to follow up on the unexpected micro-strokes. Pray that testing will reveal no new lesions, and we can walk away from this mystery unsolved, but no longer in danger.

Finally, pray for Lisa (and me). We need to find peace in this storm. Thank you for all your kind words, cards and emails. You are a blessing to us!

To say that this summer has been a little difficult would be like saying Moses took the Israelites for a little walk in the wilderness. Although I won’t dwell on the details in this blog post, the past three months have been the most trying of my adult life.

GrandPa's Funeral - Military Honors

During finals week for the Spring semester, I rushed to California to care for my grandfather. (I wrote about that here.) Although that was difficult, it was good to be able to see my grandfather. My father joined me on this trip, and I’m thankful for the time we had to talk in the car and at my Grandfather’s cabin. The day before I left I was able to have a long talk with my grandfather in the hospital as we were arranging for hospice care. I am so thankful that I had that opportunity before he passed away. Although I missed a summer class I had registered for to make this trip, that is a small price to pay to connect with family at such a crucial time.

I returned home – but it was less than a week before my grandfather passed away. Due to the generosity of my father, Lisa and I were able to fly out to California for my grandfather’s funeral. For many reasons, that was a very difficult process. It was good to see family and friends again, but this wasn’t the type of reunion one desires.

Once Lisa and I returned to Dallas, I turned my attention towards catching up on all the work that I had let slide with my responsibilities at church as well as preparing for my Hebrew summer class that would be starting in a couple of weeks. But God wasn’t done with us yet! I was excited and nervous to be preaching my first sermon at my home church. I was sitting at a local coffee shop the Saturday before I was supposed to preach doing some last minute preparation. Then came the dreaded phone call.

Lisa, in tears, told me that we needed to rush Anja (my 8 year old daughter) to the emergency room. I packed up, and drove straight home. To make a very long story short, that sermon I was preparing for was one that would never be preached. We spent several days in the hospital with Anja, going through test after test. She is home now, although we have a long road ahead of us concerning her health and treatment plan. I will fill in those details in a subsequent blog post. (Promise!)

Now I’m looking at the calendar and seeing that the Fall semester begins in three weeks. Where has my summer gone? Both classes I had planned on taking had to be withdrawn from as a result of all that has happened. This could result in my graduation from DTS being delayed a full year, but time will tell. Although this is a summer that I never wish to repeat, even now I can see the lessons God has been teaching us as well as how we have been fundamentally changed as a result. I don’t think we ever will have an answer as to “why” God allows what He allows…But I do know I can trust Him through it all!

Quick update and prayer requests.

My grandfather on my father’s side has had a series of recent health problems. From an email I received today, it sounds as though he is in rapid decline. Although my aunt is there at the moment to help care for him, she is unable to do so and desperately needs help.

I will be taking my last final tomorrow. I am making arrangements to fly out to California to help my aunt and to be with grandpa while I still can.

Please pray – specifically for the following:

• That I will be able to fly to CA and back. (Anyone have frequent flier miles they are willing to offer?)
• That I will be able to serve my family and be a blessing during this difficult time.
• That grandpa will have lucid moments so that I can have meaningful conversation with him, show him pictures of his great-grandkids, etc.
• That needs will be met! In order to do this, I will be taking time off from work both at church and on campus. Through God’s grace we have enough money to pay rent for May, but we have a handful of bills as well as a summer tuition payment that needs to be made ASAP. My time away from work will hurt. God is faithful, and I believe my priorities are straight.

Thank you for your prayers, and I’ll keep you all updated!

What is your church doing to serve the disabled community? I heard some eye-opening statistics today in class. Did you know that according to a recent study 41.3 million people in this country are classified as disabled? That’s slightly less than 1 in 7 – here in the southern states, the number is closer to 1 in 5!

With that number in mind, consider the fact that 53% of individuals with a disability do not attend a local church in any form. A large part of the reason for this is that very few American churches (less than 15%) have an intentional program of any kind that is geared to service individuals with disabilities.

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